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Time for Action Campaign — On the heels of the September 7, 2010, historic NIH meeting with ME/CFS patients and their families, now is the time to let our federal health agencies know we are expecting big changes. The more they hear from us now, the more they’ll listen to us next time we meet. Our “Time for Action” campaign is advocacy made easy — yet it will have a huge impact. We ask patients, their families and friends to email, call and/or fax NIH Director Collins and NIAID Director Fauci with this simple question every day, starting today. (Please Cc: emails to Robert Miller at: hebs1reel@yahoo.com) Dear Directors Collins and Fauci, What have you done for ME/CFS today? Patients and their families are waiting. Name: John Doe (or John) Location: Miami, FL Time: Sick 12 years Contact info: 1) National Institutes of Health Director Francis Collins Email: collinsf@od.nih.gov Cc to: hebs1reel@yahoo.com Phone: 301-496-2433 Fax: 301-402-2700 2) National Institutes of Allergy and Infectious Disease Director Anthony Fauci Email: afauci@niaid.nih.gov Cc to: hebs1reel@yahoo.com Phone: 301-496-2263 Fax: 301-402-3573

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Time to get on Frank and Pelosi.. again. Today’s Victims: HR 1207- Nancy Pelosi D-CA8, Barney Frank D-MA4, and Jim Matheson D-UT2. S604- Senator Senator Michael Bennet D-CO. Time to contact Frank and Pelosi yet again about giving 1207 a hearing/vote. Senator Bennet and Congressman Matheson were requests. Please keep on sending your requests! Info: Barney Frank D-MA4 WASHINGTON 2252 Rayburn Building Washington, DC 20515 tel: (202) 225-5931 fax: (202) 225-0182 NEWTON 29 Crafts Street Newton …

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What better way to start the week than with mass contacting some representatives?? Today’s Victims: Robert Wexler D-FL19, Debbie Shultz D-FL20, Ron Klein D-FL22, and Alcee Hastings D-FL23. These 4 are the remaining representatives left in Florida we have not yet contacted. I will be emailing or faxing them all Alan Grayson’s letter, reminding them why it is important they take their fellow Colleague from Florida’s advice, and jump on board with 1207. I will post the link to his letter below …

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CONTACT THE FOLLOWING SENATORS/REPRESENTATIVES AND TELL THEM TO SUPPORT S604 BEING THE SENATE BILL AND HR1207 WHICH IS CONGRESS’ VERSION OF THE FED TRANSPARENCY ACT. Doing an S604 bomb today. We need to get some more Senators on board! Today’s Victims: Senator Al Franken D-MN and Senator Mary Landrieu D-LA. Let’s welcome Franken to the Senate by sending a big wave of faxes, emails, and phone calls, requesting he cosponsor S604. He only has contact info up for his DC office right now, as I am …

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8 to go until veto proof majority cosponsors this bill. We need to work hard and work together to get this done! Today’s victims: Mike Thompson D-CA1, Dennis Cardoza D-CA18, Jim Costa D-CA20, and Joe Baca D-CA43. All 4 of these congressmen are Blue Dog Democrats. I figured we would focus on the Blue Dogs, as they might be the most likely holdouts to cosponsor. Info: Mike Thompson D-CA1 WASHINGTON, DC OFFICE 231 Cannon Office Building Washington, DC 20515 Phone: (202) 225-3311 Fax: (202) 225 …

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Today’s victims: Jim Marshall D-GA8, John Lewis D-GA5, and Sanford Bishop D-GA2. These are the last three holdouts in Georgia, so let’s get them on board. I am also going to include Barney Frank’s info again today, since a lot of us were not able to get faxes through to him yesterday. We won’t let him off the hook that easily. Info: Jim Marshall D-GA8 Washington Office: 504 Cannon House Office Building Washington, DC 20515 Phone: 202/225-6531 Fax: 202/225-3013 Macon Office: 682 Cherry Street …

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7/15/09 CONTACT THE FOLLOWING SENATORS/REPRESENTATIVES AND TELL THEM TO SUPPORT S604 BEING THE SENATE BILL AND HR1207 WHICH IS CONGRESS’ VERSION OF THE FED TRANSPARENCY ACT. The list has grown to 267, but we still have work to do! Looks like two of our targets last week joined on, Yarmuth and Kirkpatrick. Also, Rogers was a target of ours a few weeks ago, I wonder what took the guy so long to finally commit?? Today’s Victims: Congressman Mark Kirk R-IL10 and Congresswoman Jo Ann Emerson R …

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